Independent
Living Advocacy
Advocacy is an important tool in the service provision arsenal. Getting support
from someone who really understands the barriers disabled people face is absolutely
crucial if the direct payments support package is going to be genuinely empowering.
Peer-based support is the most effective way of doing this - that is, support
from other disabled people with the appropriate training and experience, and
who are independent of the funding bodies. Feedback and evaluation from existing
support organisations bears this out getting independent support when it is
needed is also vital. A support worker should meet with a person who is interested
in Independent Living to explore the options well before a community care
assessment takes place (i.e. self-assessment). This means that when they do
have an assessment they are properly prepared. They know what they want from
a support package and are able to make informed choices. Direct payments work
most effectively when the prospective employer has had an opportunity to fully
explore all options.
It is not the role of the support worker to advise or manage PAs or other
workers. This is the employer's role. Likewise in situations of conflict between
employer and employee it may be advisable to encourage the employer to seek
legal advice beyond the skill / knowledge of the support worker, though the
training, advice and support should help to avoid such situations from arising.